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Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don’t go according to plan? What happens when parents have to become advocates for their child’s healthcare needs? Who decides what is in a child’s ‘best interests’?
Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie’s own experiences, this sensitive book delves into the complex world of medical ethics and paediatric palliative care. From recognising tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child’s care.
Interviews with clinicians and snapshots from the lives of patients’ families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.
Author Biography
Stephanie is a Communications Professional and Writer. She draws from her own lived experience of the loss of her child together with a professional interest in the fields of palliative care and medical bioethics to bring a perspective “from the other side of the hospital bed”. She is regularly invited to speak at high profile events including the RCPCH Annual Conference and the Great Ormond Street Bioethics Conference. She is regularly approached for comment by major media outlets as an expert on conflict prevention in paediatric care, bereavement and end of life care.
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